With about 12 weeks left until my hysterectomy I have been thinking of all the things I need to do and buy to prepare me for this surgery. I am looking for some book recommendations - I just want a good, get your nose stuck in it kind of book. Uplifting preferably - nothing with pregnancy in (just to protect my heart). I am also looking for some gorgeous pj’s for my post op stay to make me feel good, would love everyone’s recommendations. Going to treat myself to some new make up and a nail varnish for when I get home too. Oh also any good tv series on Netflix or Sky that I should record or watch? I am going to be stuck in bed for a while so might as well make the most of the me time. Also looking for some gorgeous chunky yarn in a dusky rose so I can finally start (and maybe finish) a double size blanket for my bedroom. Thanks in advance for any recommendations. I will write them all down and collate a shopping list of lovely things. Hopefully it’s summer so I can get some maxi dresses to wear whilst recovering too. 🤞#hysterectomy#endometriosis#adenomyosis#surgery#radicalhysterectomy#TAH
1 hour ago
Day 24: Surgery #theendophotochallenge2018
I had my first (ablation...I didn't know any better) surgery in 2012, second (excision) 2013 (top pictures), third (excision) 2014. After each one my endometriosis came back within five months.
I was at the end of my options and desperately needed help as I could barely move for the pain.
I then had total peritoneal excision surgery in march 2016. It was such a tough surgery and my very skilled surgeon removed the top layer (minimum) from my entire peritoneal cavity and the organs inside of it. This is to make sure that all invisible/microscopic endometriosis is removed and the endo will not return. I had my ovaries suspended (bottom right photo) to stop adhesions but the suspensions were gruesome and agonising. I can only describe the recovery as "hell". I wouldn't put my worst enemy through it. However, it has worked. I have adenomyosis and interstitial cystitis so my current pain is from that but my endometriosis pain has gone. Unfortunately this may only last four/five years.
Am I glad I had it done? Yes. Would I put myself through it again? Probably not. Would I recommend it for women who can't cope with their endo? Yes.
Please know that this is not a cure, and is not guaranteed to work. It is a major surgery (mine was six hours) with a daunting and painful recovery. I wouldn't want any of you to decide on this operation without the facts.
If any of you want to talk about surgery in general or TPE surgery, feel free to message.
2 hours ago
Any who suffers with chronic pain will know that some days are better than others. I started this journey in pain but over the last month the pain became considerably worse - the thought of standing and cooking a meal especially after a full day in work..... I just couldn't do it so I ended up ordering takeaway way too many times! I'm still in a lot of pain, I'm still struggling however I'm also still miserable with my weight, still a bridesmaid in May and now know that I'll also be having multiple ops in the near future for my conditions. I'm going to be in pain regardless - there's nothing I can do about that however, I can do something about my weight loss journey and get my head back into the game! That I can control!
REAL STORY SERIES
Alexis | 20 | Louisiana, USA
I have suffered with horrendous pain since the age of 13 when my periods first began. At first I was blown off by everyone around me “every woman goes through this, it’s normal.” But it wasn’t normal.
I was always the sick girl, the girl who always had something wrong with her but it was nothing visible.
I was not diagnosed till the age of 19 which was last year. 7 years of people telling me nothing was wrong. I am still on a rocky roller coaster with my endo, I will be having my second surgery at the end of next month followed by pelvic floor therapy. I will not stop fighting and I will make sure Endometriosis is known, to not have people say “what is that” when you tell them you have Endometriosis.
Alexis also has a blog about Endo https://truerthantrue20.com/
4 hours ago
#Repost @ftww_wales (@get_repost)
Although we are very saddened this is a problem women and girls here are struggling with, FTWW is delighted to see Wales leading the way on tackling the issue! 'Free sanitary products will be distributed via community groups, schools and food banks in a bid to tackle "period poverty" across Wales.
Leader of the House Julie James AM said councils would share a £1m fund to help "those who need them most". She said she had heard reports mothers were going without so their daughters could buy sanitary products and it was "unacceptable".' #FTWW#periodpoverty#menstruationmatters#womenshealth#Wales#Periods#endometriosis#adenomyosis#fibroids#endthestigma#Women#girls#poverty#Schools#foodbank